Unmet psychosocial needs in CAPS

Introduction Cryopyrin-associated periodic syndrome (CAPS) is a rare autoinflammatory disease. Generalized manifestations like recurrent fever and fatigue and organ disease like reduced vision, hearing loss, bone deformities and aseptic meningitis impair patients’ well-being. While most physical complaints are well defined and managed by effective IL-1 inhibition, areas of psychosocial needs are much less explored and often unsatisfied even in treated patients.